Viva La Difference!

Decisions, decisions, decisions….which book do I pick? While cruising the bookstore for another mystery to read, I wandered over to the health section. I thought I would check to see if what is in print regarding Fibromyalgia. I found one of the titles that touted “the latest information on new medication” to actually be published in 2001. Good thing I checked the publication date inside the front cover. I know there have been advances in medication since 2001. Then I checked the ‘diet and Fibromyalgia’ titles. Okay, not just the titles, I flipped through the pages. I had to. I cannot buy a book without peeking in it. So….I flip through the pages of several books and find some contradictory information. Which one do I believe? Alternative medicine or traditional medicine? New treatment, alternative or traditional?  I have no idea. There was one book I noticed that gave you choices, both sides to alternative and traditional medicines. By doing so, it let you make the decision. Now that’s what I think should happen, give me both sides of the issue and let me make an informed or not so informed decision.

When I got home, I got on the internet thinking I would check out some information there.  I have copied and pasted below something I found on Web MD regarding diet and Fibromyalgia:

"This is because fibromyalgia is not a specific illness," says Michael McNett, MD. McNett directs the Fibromyalgia Treatment Centers of America, headquartered in Chicago. "Fibromyalgia is more like a symptom complex, and different people appear to have different reasons why they get this symptom complex," he says. "So what works for one person very frequently does not work for another."

And this, say experts, includes dietary measures.

Kent Holtorf, MD, is the medical director of the Holtorf Medical Group Center for Endocrine, Neurological and Infection Related Illness in Torrance, California. He says, "We're at the point now where we know diet plays a role in this disease -- it's just not the same diet for everybody. And not everybody is helped in the same way."

This seems to go along with what I had been thinking when browsing through the books. Everyone is different!!! Fibro treatments and diets are as individual as we all are.  I am glad we are all different: otherwise it might be kind of boring. Then again, we might all have Fibromyalgia….or not! That would be a good thing. Maybe if you keep a log or diary, you might write down the foods you eat. You may notice a trend with foods and how you feel. It would only be natural that foods would make you feel better or worse. I know chocolate makes me feel better. At least I know I love chocolate and eating it makes me smile, so it has to make me feel better. I know the tea and coffee I drink keep me awake and I am not sure I want to know if they are good or bad for me.

I hope you all find the food that works for you and a healthy diet that you can live with. Remember we are all different and as the French say…. “Viva la difference!”  

For the Record

I don’t know about you, but when I was little I begged for a diary, one with a lock and key in which I could pour out my heart and deepest darkest secrets. I wrote in it daily, hiding it beneath my pillow each night. Yes, hiding it, so my brothers wouldn’t peek inside seeking to find something useful to torture or bribe me with. Little did I understand they were master lock smiths at the ripe old age of 13 and 14. Okay, so maybe not lock smiths, but they were master diary lock pickers. Thank goodness I learned this at an early point before I filled the diary with my secret crush on Stanley T. Applegate. Stanley T. Applegate…(heavy sigh)…but I digress….

Since then, I have not taken much stock in diaries or tiny brass locks for that matter. There are other kinds of diaries though, such as the one I stumbled upon at a pain sight. This was a pain diary in which you could track your pain on a daily basis. I downloaded it and I will try to share the Adobe file with you. Tracking your pain may help you to better control it. I have always tried to track my pain by making mental notes along the way. Over time, I have learned what I can and cannot do. I am sure you may have noticed the same thing. By keeping a daily log, you can share it with your doctor as well and possibly adjusting your medications or changing them altogether.

There is a reason doctor’s use the term, pain management. Managing your pain and reducing your level of pain can help you live a healthier, more active life. Since I changed my medications and made attempts to be aware of what causes more pain and how I can alleviate it, I have actually become more active. Yes, I limit myself, but in a good way.  Keeping a pain diary may not be for everyone, but you never know until you try. You also cannot judge a diary by its cover. Try it for a month and see what happens. What have you got to lose….except maybe pain?

Here is the link you will need to download the pdf file:

http://partnersagainstpain.com/printouts/Daily_Pain_Diary.pdf

Don’t be afraid to try new things or to be honest with yourself. Be open to new, different or old ideas. Keeping a pain record may not be new, but it may be new to you. Call it a record if it makes you feel better about it, because let’s be honest, that’s what it is.  So grab some paper and a pencil. Yes, you will want a pencil with an eraser most likely.  Let me know how it works for you, or if it doesn’t. Good Luck and well wishes. I’m going to go look for my old diary. Maybe I’ll look for Stanley T. Applegate too. (LoL)

Will I ever learn?

As usual, I never listen to my own advice.  Take for example: the art of pacing oneself. I know I should do it and yet….I tend to over do things. It was a nice day out, the contractors were fixing my garage doors and I was in a cleaning mood. I felt good when I woke up and I actually got up earlier than usual thanks to the time change. Let me tell you, that extra hour of sleep really helped!

So being full of energy, bright eyed and bushy tailed, I decide to not only clean and scrub the bathroom, but to do 7 loads of laundry, sweep and vacuum the floors, put away some summer clothes, got out the winter ones made supper and experimented with making a new variety of cookie. I should have known better, I do know better. Yet, as always I am optimistic about what I can achieve. I did achieve quite a bit. It just took a little longer to get to sleep, a few more hours of pain. Oh well, I guess that makes up for some of the extra sleep I got with the time change.

I did use my brain for good and played with my oatmeal cookie recipe. If you feel adventurous, you may want to try it. I always use the “Vanishing Oatmeal Cookie” recipe on the inside lid of Quaker Oats. This time though, when pulling out the ingredients to use, I saw something I had purchased the week before at the store. I had bought some Cherry Craisens and Pomegranate Craisens. I know I like the flavor of cherry and pomegranate together so why not trade the raisens for Craisens? Oooh, and a bag of sliced almonds. Cherry and almonds go together.  So I followed the recipe except for the cinnamon. I only used ¼ Tsp. of cinnamon. Instead of raisens, I used ½ cup of Cherry Craisens and ½ cup of Pomegranate Craisens. I used almond instead of walnuts. Low and behold, I had some white chocolate chips in the cupboard as well. I thought I should add a little sweetness and so I added 2/3 cup of the white chocolate chips. I baked the cookies at the same temperature and for the same length of time. I liked the taste. They were a hit with everyone. I think if I would have had Almo-van flavoring instead of just vanilla it might had been better. Almo-van is a combination of almond and vanilla flavoring. You can substitute Almo-van with equal parts vanilla and almond flavoring, a flavor I grew up with as my mother was a cake decorator. It just adds a little something to the flavor. So if you feel adventurous, you may want tot give it a try.

At least I as able to able to enjoy a few cookies in my sleepless hours.  Did I learn anything from overdoing it? No, I will most likely not listen to my own advice and will not pace myself. They say pain is a great teacher. All I can say, is I must be pretty stupid. Maybe I should write a few notes to myself, oh yeah, if only I didn’t have fibro-fog and I could remember to do that! (LoL) Oh well….maybe someday I will learn. Just maybe....

Every time a bell rings...

Most everyone is familiar with the line from the movie, It’s a Wonderful Life; “Every time a bell rings an angel gets its wings.” There are an awful lot of ringing bells, so there must be even more wingless angels. So what is an angel? I’ve met several in my life, all of them wingless earth angels. The dictionary describes an angel as someone having the qualities which are generally attributed to an angel such as; beauty, pureness, kindness, virtuous thoughts or actions, and somewhat of a guardian.

I am sure you have met an angel in your life, someone that is there for you, someone to lean on, to listen to you, to lift your spirits. Angels come in all shapes, sizes and ages. My angels give me continual support. They probably don’t even know it, but just knowing that I can reach out if I ever need to, well….sometimes that’s all I need to know. Sometimes that’s all we need. We often do things of our own accord, but angels are like invisible braces. They are there, you can’t really see them but they are there in the background, they straighten you out when you need it and offer support. Then there are angels that exude radiance. When they walk into a room, their smile lights up the whole room, a goodness comes out for all to see. You can’t miss them. Really. They just make you happy being around them. My angels are buoyant keeping my mood afloat in seas of trouble or pain. I don’t know where I would be without my angels, but I am thankful for them.

Better yet….are you an angel in someone else’s life? Is there something you can do to uplift a friend, a stranger even? Don’t ask what has someone else done for you lately, rather what can you do for someone else. Can you stop in to see an old friend, make a phone call, send a text or an email? Can you do shopping for someone, make a dish, and invite them over? Just spending time with someone might be all they need. Many people refuse help when you offer it and sometimes we need to take no for an answer. Often times we have difficulty doing things for ourselves. Take what time you can to be an angel. It will lift your spirits making you feel better, not to mention what it will do for the other person. Be genuine in your efforts, no one likes a fraud. Be positive in your thinking and actions and you can’t help but be an angel. Someday you’ll get your wings!

Fibro Soothing Soup

Cold weather lurks behind the coming clouds and months ahead. There are days that I find I don’t have the energy to put on lavish feasts, let alone the time. I used to make a French Onion Soup that required hours and hours and browning a whole bag of small white onions. My eyes would be bloodshot from crying and my nose would run furiously from the onion vapors.  I even tried cutting and cooking them with goggles on. It never failed; the sulfuric acid would seep into the tiny air vent holes. (Doh! Maybe I should have used swimmers goggles.) And what about the smell it left in the house? Yuck…it seemed to last for days.

After visiting a few local restaurants and sampling their French Onion Soups, I thought I could shorten the process dramatically.  They served it on their menu daily and the restraint didn’t reek of charred onions and leave me crying. They had to make it daily, so I set out on a quest and experimented in my kitchen with what I call Kelly’s Easy French Onion Soup. It takes as little as 45 minutes to be enjoying it from start to finish. I make this when I want to feel all warm and fuzzy inside and I know I have plenty for several days. I hope you enjoy it as much as I do. As Julia would say: “Bon Appetite”

You will need:

1 large sweet white onion sliced thin

1 TBL minced garlic

1 TBL butter

1 TBL virgin olive oil

Using a large pot on medium heat, brown your onions and garlic in melted butter and olive until the onions start to become transparent. (To speed up the process, you can cover the pot so that the onions are steamed on a medium high heat.) Deglaze the pan with:

1 box chicken broth

1 box beef broth

Then add:

2 beef bullion cubes

1 TBL beef soup base

8 to 24 ounces of water (This depends on how strong you want the flavor)

Salt and pepper to taste

1 TBL parsley

1 TBL oregano

Simmer on low to med-high for 30 minutes. While soup is simmering, cut into ½” cubes an artisan bread such as Asiago Cheese Semolina or Parmesan Peppercorn. Toast the cubes of bread under the broiler so that both sides are browned.

Ladle the soup into a bowl; add croutons and a few shavings of Parmesana Reggiano and top with one slice of Swiss or Provolone cheese. Place under broiler until bubbly and brown. Serve with a sandwich if you like or soup alone. For a sweeter soup, add 2 cups of white wine. Dig in!

Feeling Good

What would you do if you had no pain? Okay, maybe not “no pain”, how about little pain? What would you do if you could do what you wanted without the side effect of pain? I randomly took some pictures off the internet to represent what I might do.

After rising this morning and wiping the last vestiges of sleep from my eyes, I realized I didn’t feel too badly today. We gained an hour of sleep with the time change and it felt wonderful! Yesterday we experienced extremely cold weather for this time of year and it was Breakthrough Pain day for me. My insides were dreading what today would bring, but it wasn’t so bad. I took it easy yesterday and made sure I kept warm. I feel better than I have for a few days and I wished I could just go out and do something without having to worry about the side effects. I wanted to do cartwheels, climb a mountain and take photographs, run along the beach, go snorkeling and have fresh clam chowder. Maybe even go on an African safari, cook or bake to my hearts content, clean the house from top to bottom and then sleep like a baby. What would you do? Really, what would you do?

 

I decided that my previous post about pictures being worth a thousand words was not the positive image I wanted to display. It may help others better understand what we feel, but let’s move forward from that. Let’s focus on what we would like to do. Make a mental list of something you would like to do when you feel better. Don’t worry whether you will ever achieve this goal, but focus on how to achieve that goal. Take baby steps.

 Years ago, I dabbled in watercolors. I haven’t picked up a paintbrush since I moved from the Seattle area back to Ohio. I think I lost my inspiration years ago and feel the need to re-gain it. I am a creative person by nature as my parents and siblings are all creative. If I am honest about it; my father excelled in woodworking and winemaking, my mother cake decorating, baking and stained glass, my one brother art and photography, my other brother mechanical things and electronics, my sister cooking, baking and art, I am a jack of all trades and master of none. I have sold some of my art as well as writing. I guess that officially makes me a professional artist and writer.  My work cannot even begin to reach the level of my one brother, he is truly gifted and I feel like a fake. As a child, I envisioned myself working for Walt Disney. I wanted to be an illustrator, but early on realized I was not as good as my brother or others. I would never be a Da Vinci, Rembrandt, Mucha, or Waterhouse. I needed to have my own style.

So my goal is to become more creative again. I cannot work on stained glass restoration as I used to. FMS does not allow me the freedom to do some of the necessary things. I can do some of the work, but no more climbing on scaffolding or lifting heavy sheets of glass. So…why not design stained glass patterns? That could combine drawing and stain glass work. I might be able to achieve 2 goals in 1. As I work on the goal, I might be able to make my other desires possible as well.

Tell me what your goals are. Maybe we can inspire one another or work out ways to make these goals or desires happen. I leave you with one of my last paintings and well wishes for a bright and happy day. I call this painting “Freedom”. I didn’t realize it would come to mean freedom from FMS.

A Picture is Worth A Thousand Words

How does a person explain Fibromyalgia to someone who doesn't have it? I found different pictures on the internet which I have copied. I did not take these pictures or create them. I am not even sure who they are all from, but I wish to thank whoever did them for expressing such feelings and emotions in them. As an FMS sufferer, I am sure you will relate to them. Please share some of your own as well. Thank You!